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LHF invites you to a "GIRLS NIGHT IN"! A virtual painting party for ladies with bleeding disorders. Join us Thursday May 28th at 6:30 PM for a evening of relaxation and fun. Our painting host will guide you through the process with a pre-sketched canvas, paint and brushes. For further information contact us at (225) 291-1675 or email Outreach@lahemo.org.

This interactive event will be hosted on Zoom, and will include all that you need to participate delivered right to your door. You must register in order to attend. To register, follow this link:

Register in advance for this meeting:
https://us02web.zoom.us/meeting/register/tZIsdOmpqT8jG9QU7msOCmmlhULoVvOzMz-I 

If you are not familiar with Zoom, that's okay! We will help. We look forward to spending a wonderful evening with you! 

Registration closes for this event on Friday May 22nd. We are unable to register anyone after this deadline so do it today!!!

LHF Cancels Live Events Through 4/30

As our state responds to an outbreak of COVID-19, classified as a pandemic, LHF is closely monitoring the situation and is evaluating its potential impact on the bleeding disorders community and our programming. 

 

On Friday, Governor John Bel Edwards closed K-12 public schools until April 13 and banned large gatherings. In line with the Governor's order, and out of caution for the health and welfare of our community members, LHF is postponing Louisiana Capitol Days (scheduled March 24) and Family Day in the Park (scheduled April 4). These are the only programs that will be affected at this time, however this may change as this situation develops.

 

Family Day in the Park will take place in 2020. The date will be rescheduled and announced as soon as it is available. If you are registered currently, you do not need to do anything to hold your spot for the new date. We will be working with event partners, sponsors and registered guests and will notify you of all updates as they are available. 

COronavirus helpful information

- The New York Times has an article on the virus and COVID-9  (https://www.nytimes.com/article/what-is-coronavirus.html) which gives an overview of what we know at this time. Stay calm and educate yourself through credible news sources

 

 

- Follow the Centers for Disease Control (CDC), National Hemophilia Foundation (NHF), and the Hemophilia Federation of America (HFA) for up-to-date information.

    

    Recommended links to learn more: 

 

   https://www.hemophiliafed.org/news-stories/category/medical-news/ 

 

  https://www.cdc.gov/coronavirus/2019-ncov/index.html

 

   https://www.hemophilia.org/Newsroom/NHF-Community-News/MASAC-Letter-to-the-Community-Regarding-the-Coronavirus-Disease-2019

 

 

- Nothing has changed in regards to the frequency or volume in which you receive your medication(s). Providers and pharmacies are continuing to follow state mandates. If you have questions or concerns, please reach out to your HTC, hematologist or health care provider. 

- The Governor has declared a Public Health Emergency. This exempts many utility companies- such as CLECO, Atmos, Entergy and AT&T- from disconnecting services for non-payment. This order applies only to companies regulated by the LPSC. For a full list of companies, visit lpsc.louisiana.gov. 

 

- Please use LHF as a resource. We understand that this situation may affect you all in many ways, and we are here to help. Do not hesitate to reach out for any questions or concerns that you may have.

Our Mission: To improve the quality of life and assist persons affected by inherited bleeding disorders by providing education, advocacy, support services, and by promoting research

We offer the following services to the bleeding disorders community:

EDUCATION  

We host programs across the state that are open to all

PATIENT ASSISTANCE

To help during those tough times

ACCESS TO CARE

For needs that arise from receiving medical care, such as gas & lodging

MEDIC ALERT SCHOLARSHIPS

To provide life-saving services in case of emergency

EDUCATIONAL SCHOLARSHIPS

To help better lives through higher education

SUMMER CAMP

To grow and empower our youth into leaders 

  ANNUAL MEETING

To build our community and strengthen through knowledge

                       

A little about us

The Louisiana Hemophilia Foundation was established in 1976 to help Louisiana residents with hemophilia, von Willebrand disease, and other bleeding disorders, lead normal and productive lives. We are a 501 (C) 3 Organization.

Our mission is to improve the

quality of life and assist persons affected by hemophilia and other inherited bleeding disorders by providing education, advocacy, support services, and by promoting research.

 

Founded in 1976

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Contact

3084 Westfork Drive

Suite A

Baton Rouge, LA 70816

​​

Tel: 225.291.1675

Fax: 225.291.1679

contact@lahemo.org

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The mission of Louisiana Hemophilia Foundation is to improve the quality of life and assist persons affected by inherited bleeding disorders by providing education,

advocacy, support services, and by promoting research.

We are a 501(c)3 nonprofit organization serving the bleeding disorder community since 1976.

Louisiana Hemophilia Foundation provides networking opportunities, access to care, summer camp for children, educational programs, scholarships, & MedicAlert Services.

Louisiana Hemophilia Foundation 2017