Please join our fundraising efforts in order to support families in need this Christmas in the Bleeding Disorder Community! We are offering this gorgeous textured 24"X28" Oyster Canvas created by Maria Boudreaux of Fleur de ME Designs. Maria created this masterpiece during LHF's virtual painting party. Use link below to purchase your $10 ticket today. Drawing will be 12/23/20. Winner will be announced on Facebook and our Website
Please join us in wishing farewell to our Executive Director, Erica Simpson. Erica is starting a new journey with the Greater Baton Rouge Food Bank, and we wish her well. Upon her exit, we will be looking to fill the Executive Director position as well as 2 voting board member positions. All interested parties should submit a resumé and a letter of intent to both and by Nov. 30th, 2020 . We look forward to hearing from you!
Hurricane Resources
As we deal with the aftermath of Hurricane Sally, Laura, Delta, and Zeta please know that LHF is here for you.
Should you and/or your loved ones need assistance in any way after the storm, please don't hesitate to reach out. We will be standing by to lend our help where it is needed.
You may reach us directly by calling our office at (225) 291-1675, or by email.
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We encourage you to share this message with other members of the bleeding disorders community who might not be on our mailing list.
Wishing you safety during this difficult time-
LHF Board and Staff
Hurricane Zeta
Resource List
Pres. Trump Approves Gov. Edwards' Request for Federal Assistance Related to Hurricane Zeta Response
October 28, 2020
President Donald Trump has approved Gov. John Bel Edwards’ request for federal assistance related to Hurricane Zeta. The request was approved by the President and the Federal Emergency Management Agency (FEMA) Tuesday evening, hours after it was submitted by Gov. Edwards.
FEMA is authorized to provide appropriate assistance for required emergency measures, authorized under Title V of the Stafford Act, to save lives and to protect property and public health and safety, or to lessen or avert the threat of a catastrophe in the designated areas.
“I appreciate the President’s quick approval of our request for an emergency declaration, especially since Hurricane Zeta has strengthened overnight,” Gov. Edwards said. “This assistance will be critical in responding to this hurricane, assisting local governments and beginning our long-term recovery efforts. Louisiana has faced an incredibly active hurricane season this year, and we have been working in partnership with the federal government and local officials since March on the response to the pandemic in addition to two major hurricanes in Southwest Louisiana.”
FEMA is authorized to provide Public Assistance Category B emergency protective measures, including direct Federal assistance for the parishes of Acadia, Allen, Ascension, Assumption, Beauregard, Calcasieu, Cameron, East Baton Rouge, East Feliciana, Evangeline, Iberia, Iberville, Jefferson, Jefferson Davis, Livingston, Lafayette, Lafourche, Orleans, Plaquemines, Pointe Coupee, St. Bernard, St. Charles, St. Helena, St. James, St. John the Baptist, St. Landry, St. Martin, St. Mary, St. Tammany, Tangipahoa, Terrebonne, Vermilion, Washington, West Baton Rouge, and West Feliciana.
FEMA is also authorized to provide Public Assistance Category B emergency protective measures, limited to direct federal assistance for the parishes of Avoyelles, Bienville, Bossier, Caddo, Caldwell, Catahoula, Claiborne, Concordia, DeSoto, East Carroll, Franklin, Grant, Jackson, La Salle, Lincoln, Madison, Morehouse, Natchitoches, Ouachita, Rapides, Red River, Richland, Sabine, Tensas, Union, Vernon, Webster, West Carroll, and Winn.
Additional designations may be made later based on the storms impact and the damage assessment process.
This assistance is generally provided on a 75% federal, 25% non-federal cost sharing basis.
The Governor’s Office of Homeland Security and Emergency Preparedness will continue working with FEMA to ensure that reimbursement of other emergency costs will be approved as well as costs for other regions of the state should they be needed for this event.
Members of the public should monitor the news for weather updates and follow guidance from local officials about storm issues in the coming days. The Governor’s office will also share updates about severe weather and COVID-19 through its texting system. People may opt-in by texting LAGOV to 67283 and sign up for phone calls by going to Smart911.
Find more tips on weather and preparedness on GOHSEP’s Facebook and Twitter accounts. Listen to conversations on all aspects of emergency management by downloading GOHSEP’s The Get A Game Plan Podcast. You can receive emergency alerts on most smartphones and tablets by downloading the new Alert FM App. It is free for basic service. The Get A Game Plan App is another resource available to help you and your family prepare for any type of emergency. You can download the Louisiana Emergency Preparedness Guide and find other information at www.getagameplan.org.
HURRICANE SALLY (MISSISSIPPI)
RESOURCES LIST
FEDERAL EMERGENCY MANAGEMENT RESOURCES
Help Line: 1-800-621-3362
TTY: 1-800-462-7585
*6 AM to 10 PM CST*
https://DisasterAssistance.gov
To update and track application for assistance
Disaster Name: EM-3544-MS
Declaration Date: September 14, 2020
Small Business: 202-288-4657/FEMA-SB@fema.dhs.gov
EMA has officially declared Hurricane Sally a disaster and is beginning to bring aid to the region. The first Counties that can apply for Individual and Public Assistance are: You can see the map at FEMA’s website: FEMA Disaster Declaration – Mississippi: https://www.fema.gov/disaster/3544
For anyone who needs to apply for aid, they can visit DisasterAssistance.gov or call 1-800-621-3362. www.fema.gov
The Federal Emergency Management Agency
www.ready.gov – Prepare. Plan. Stay Informed.
www.nhc.noaa.gov – National Hurricane Center
www.nemaweb.org – National Emergency Management Association
They need the Disaster Name (Sally) and the Declaration Date (9-14-20) for those counties listed.
State Emergency
Management Resources
www.MitigationMS.org – Online application and management of Hazard Mitigation Grants
www.MississippiPA.org – Online application and management of Public Assistance Grants
www.mcdema.org – Mississippi Civil Defense and Emergency Management Association
www.srh.noaa.gov – National Weather Service
LOCAL Emergency
ManagemenT Resources
OTHER STATE RESOURCES
www.jeffdavis33ema.org – Jefferson Davis County Emergency Management
www.mississippi.gov – State of Mississippi Homepage
www.mspb.ms.gov – State Personnel Board – Job Openings Page
www.gomdot.com – Mississippi Department of Transportation
www.deq.state.ms.us – Mississippi Department of Environmental Quality
www.dps.state.ms.us – Mississippi Department of Public Safety
www.msdh.state.ms.us – Mississippi Department of Health
www.mississippi.org – Mississippi Development Authority
www.mpbonline.org – Mississippi Public Broadcasting
www.transparency.mississippi.gov – Transparency Mississippi
www.dps.state.ms.us – Mississippi Emergency Access Program
OTHER FEDERAL RESOURCES
AMERICAN RED CROSS
To find an open shelter, visit:
https://www.redcross.org/get-help/disaster-relief-and-recovery-services/find-an-open-shelter.htmlwww.sba.gov –
United States Small Business Administration
www.redcross.org– American Red Cross
www.salvationarmyusa.org – The Salvation Army
Mississippi Benefits
Medicaid
SNAP
TANS
Energy Assistance
Phone (866) 654-9330
www.Access.ms.gov or FFM at Healthcare.gov
Other Mississippi Shelters
George County:
Agricola Safe Room: 3161 Cooks Corner Rd, Lucedale, MS 39452
Bendale Safe Room: 5207 Highway 26 W, Lucedale, MS 39452
Hancock County:
Kiln Safe Room: 18324 Hwy 43 Kiln, MS 39556
Harrison County:
Saucier-Lizana Road Safe Room: 23771 Saucier Lizana Rd. Saucier, MS 39574
County Farm Road Safe Room: 15038 Country Farm Rd. Gulfport, MS 39503
Lobouy Road Safe Room: 9509 Lobouy Rd. Pass Christian, MS 39571
Jackson County:
East Jackson County Safe Room: 18413 Highway 613 Moss Point, MS 3956
West Jackson County Safe Room: 13000 Walker Rd. Ocean Springs, MS 39564
Stone County:
State Medical Needs Shelter: 1640 Coy Avenue Wiggins, MS 39577
Food Network and Pantries
Phone: (601) 353-7286
www.Foodpantries.org/st/mississippi
Louisiana Center for Bleeding & Clotting Disorders
Phone: 504-988-5433
E-mail: htc@tulane.edu
Hope for Hemophilia
Phone: 1-888-529-8023
Fax: 1-888-835-1449
E-mail: info@hopeforhemophilia.com
Website: https://www.hopeforhemophilia.com
Pan Foundation
PAN Foundation - Assistance Programs https://dev.Panfoundation.org/index.php/en/patients/assistance-programs
PSI
Patient Services Inc. | A non-profit 501(c)(3) premium and ...
https://www.Patientservicesinc.org
NORD
NORD (National Organization for Rare Disorders)
HURRICANE SALLY (ALABAMA)
RESOURCES LIST
FEDERAL EMERGENCY MANAGEMENT RESOURCES
FEMA has officially declared Hurricane Sally a disaster and is beginning to bring aid to the region. Counties that can apply for Individual and Public Assistance are: You can see the map at FEMA’s website: FEMA Disaster Declaration – Alabama: https://www.fema.gov/disaster/3545
For anyone who needs to apply for aid, they can visit DisasterAssistance.gov or call 1-800-621-3362. Federal Emergency Management Agency (FEMA)
To update and track application for assistance
Disaster Name: EM-3545-AL
Declaration Date: September 14, 2020
Small Business: 202-288-4657/FEMA-SB@fema.dhs.gov
National Weather Service (NWS)
National Oceanic and Atmospheric Administration (NOAA)
www.ready.gov – Prepare. Plan. Stay Informed.
www.nhc.noaa.gov – National Hurricane Center
www.nemaweb.org – National Emergency Management
www.sba.gov Small Business Administration
“They need the Disaster Name (Sally) and the Declaration Date (9-14-20) for those counties listed.
www.redcross.org– American Red Cross
AMERICAN RED CROSS
To find an open shelter, visit:
https://www.redcross.org/get-help/disaster-relief-and-recovery-services/find-an-open-shelter.html –
State Emergency
Management Resources
Alabama Emergency Management Agency
ALGO Traffic – ALGO Traffic provides live traffic camera feeds, updates on Alabama roads, and access to exclusive ALDOT information.
Alabama Governor’s Office of Volunteer Services
2-1-1 Connects Alabama – 211 provides a variety of health and human services including incident specific information in coordination with local emergency services during times of disaster, such as road closures and shelters.
Alabama Law Enforcement Agency
Alabama Department of Public Health
Alabama Department of Senior Services
Alabama Department of Agriculture & Industries – Temporary livestock shelters are available for evacuees.
Mid-Alabama Chapter (Regional Headquarters)
114 22nd St.
Birmingham, AL 35203
205-795-8700Details
Central East Alabama Chapter
5015 Woods Crossing
Montgomery, AL 36106
1-334-260-3980 Details
North Alabama Chapter
1015 Airport Rd SW Suite 202
Huntsville, AL 35802
1-256-536-0084 Details
South Alabama Chapter
35 North Sage Avenue
Mobile, AL 36607
251-544-6100Details
Central-West Alabama Chapter
2130 Paul W. Bryant Drive, Suite B
Tuscaloosa , AL 35401
1-205-758-3608
www.salvationarmyusa.org – The Salvation Army
Hurricane Laura Resource Information
(Louisiana)
FEMA
Help Line: 1-800-621-3362
TTY: 1-800-462-7585
*6 AM to 10 PM CST*
https://DisasterAssistance.gov
To update and track application for assistance
Disaster Name: Laura
Declaration Date: 08/28/2020
Small Business: 202-288-4657/FEMA-SB@fema.dhs.gov
Governor's Office of Homeland Security & Emergency Preparedness
Phone: 225-925-7500
E-mail: Gohsep-Operations@la.gov
Website: http://gohsep.la.gov/
Website: https://getagameplan.org
Evacuation Check Points with Assistance / Resource Information
Alexandria Area
Med Express Office
7525 US 71
Bunkie Area
Sammy’s Truck Stop
Exit 53 I49
Tallulah
TA Truck Stop
Exit 171
US I20
US I65
American Red Cross – Louisiana
Phone: 504-620-3105
Website: https://www.redcross.org/local/louisiana.html
To find an open shelter, visit:
https://www.redcross.org/get-help/disaster-relief-and-recovery-services/find-an-open-shelter.html
Louisiana Medicaid
Phone: 1-888-342-6207
Website: MyMedicaid.la.gov
SNAP
Phone: 1-888-524-3578
E-mail:
Text GETSNAP to 898211
Website: http://www.dss.state.la.us/page/snap
Catholic Charities
Disaster Response: 504-861-6351/1-866-891-2210
Referrals E-mail: Shelita Turner sturner@ccano.org/985-605-5843
Disaster Case Management Program: 985-605-5843
Website: https://www.ccano.org/disaster-response-services/
Second Harvest Food Bank
Phones:
Lafayette: 504-232-4357
Alexandria: 318-445-2773
Baton Rouge: 225-359-9940
Monroe: 318-322-3567
New Orleans: 504-734-1322
Shreveport: 318-675-2400
Website: https://www.feedinglouisiana.org/get-help
United Way of Acadiana
Phone: 337-233-8302
https://www.unitedwayofacadiana.org/
The Salvation Army
Phone: 504-899-4569
Fax: 504-891-1444
Social Services Dept: 504-899-4569
Website: https://disaster.salvationarmyusa.org/aboutus/?contactus
The St Bernard Project
Phone: (504) 644-4639
E-mail: rebuild.client@sbpusa.org
Website: https://sbpusa.org/
Southeast Louisiana Legal Services
Phone: 855-512-3980
Fax: 225-383-1197
Website: https://slls.org/
Louisiana Center for Bleeding & Clotting Disorders
Phone: 504-988-5433
E-mail: htc@tulane.edu
Louisiana Hemophilia Foundation
Phone:225-291-1675/1-800-749-1680
Fax:225-291-1679
E-mail: contact@lahemo.org
Website: https://www.lahemo.org
Hope for Hemophilia
Phone: 1-888-529-8023
Fax: 1-888-835-1449
E-mail: info@hopeforhemophilia.com
Website: https://www.hopeforhemophilia.com
COronavirus helpful information
- The New York Times has an article on the virus and COVID-9 (https://www.nytimes.com/article/what-is-coronavirus.html) which gives an overview of what we know at this time. Stay calm and educate yourself through credible news sources.
- Follow the Centers for Disease Control (CDC), National Hemophilia Foundation (NHF), and the Hemophilia Federation of America (HFA) for up-to-date information.
Recommended links to learn more:
https://www.hemophiliafed.org/news-stories/category/medical-news/
https://www.cdc.gov/coronavirus/2019-ncov/index.html
- Nothing has changed in regards to the frequency or volume in which you receive your medication(s). Providers and pharmacies are continuing to follow state mandates. If you have questions or concerns, please reach out to your HTC, hematologist or health care provider.
- The Governor has declared a Public Health Emergency. This exempts many utility companies- such as CLECO, Atmos, Entergy and AT&T- from disconnecting services for non-payment. This order applies only to companies regulated by the LPSC. For a full list of companies, visit lpsc.louisiana.gov.
- Please use LHF as a resource. We understand that this situation may affect you all in many ways, and we are here to help. Do not hesitate to reach out for any questions or concerns that you may have.
Helping Hands - Hemophilia Federation of America
Our Mission: To improve the quality of life and assist persons affected by bleeding disorders by providing education, advocacy, support services, and by promoting research
We offer the following services to the bleeding disorders community:
EDUCATION
We host programs across the state that are open to all
PATIENT ASSISTANCE
To help during those tough times
ACCESS TO CARE
For needs that arise from receiving medical care, such as gas & lodging
MEDIC ALERT SCHOLARSHIPS
To provide life-saving services in case of emergency
EDUCATIONAL SCHOLARSHIPS
To help better lives through higher education
SUMMER CAMP
To grow and empower our youth into leaders
ANNUAL MEETING
To build our community and strengthen through knowledge
A little about us
The Louisiana Hemophilia Foundation was established in 1976 to help Louisiana residents with hemophilia, von Willebrand disease, and other bleeding disorders, lead normal and productive lives. We are a 501 (C) 3 Organization.
Our mission is to improve the
quality of life and assist persons affected by hemophilia and other inherited bleeding disorders by providing education, advocacy, support services, and by promoting research.
Founded in 1976
