Hemophilia B 
Study

Hi all, my name is Chiarra. I am with Patient Connect. We are a patient advocacy company. We are currently working on a project in which we would like to interview with 10 adult male patients who have been diagnosed with Hemophilia B. We would like to start interviews with patients who are residents of the USA. This is a 90 minute web based interview. Compensation will consist of $200.00 for your time. Our goal is to better understand diagnosis, daily life with this illness, treatment, and to gain feedback for the future. Volunteering your voice and experience would be integral to help us meet our goals of understanding and improving the patient experience. If this is something you or anyone you may know would be interested in, I would love to hear from you. My number is 858-805-5009 or email me at crohr@patientstudyconnect.com.

Hurricane Ida Resource List

Click the the document above to view helpful resource information.

Updated Louisiana Covid-19 Resource Guides

Click the the document above to view helpful resource information.

Housing Assistance

Click the the document above to view helpful resource information.

We offer the following services to the bleeding disorders community:

EDUCATION  

We host programs across the state that are open to all

PATIENT ASSISTANCE

To help during those tough times

ACCESS TO CARE

For needs that arise from receiving medical care, such as gas & lodging

MEDIC ALERT SCHOLARSHIPS

To provide life-saving services in case of emergency

EDUCATIONAL SCHOLARSHIPS

To help better lives through higher education

SUMMER CAMP

To grow and empower our youth into leaders 

  ANNUAL MEETING

To build our community and strengthen through knowledge

                       

 

A little about us

The Louisiana Hemophilia Foundation was established in 1976 to help Louisiana residents with hemophilia, von Willebrand disease, and other bleeding disorders, lead normal and productive lives. We are a 501 (C) 3 Organization.

 

 

 

 

 

Founded in 1976

page01 (2).jpg
2021 Family Camp GROUP PIC_edited.jpg
  • Facebook - Grey Circle
  • Twitter - Grey Circle
  • Instagram - Grey Circle
  • Pinterest - Grey Circle
  • YouTube - Grey Circle

Follow

us

Around

Join Our Mailing List

Be a part of this incredible community!
 
It's so easy to join! Simply fill out this form & be on the list to find out fun things first.