Louisiana Hemophilia Foundation's

2021 Calendar of Events

(All dates and programs are tentative and may need adjusting according to any guidelines that may need to be adhered to)

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May 2021- 2nd Quarter Community Get Together Weekend, Rock-N-Bowl New Orleans May 15, and Lafayette May 16

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May 24-25, 2021 - Louisiana Capitol Day, Baton Rouge

Connecting with Louisiana Lawmakers to advocate for the needs of the bleeding disorders community

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June 2021- Camp Globeclotters, 

(Will adjust to any Covid-19 Guidelines in Place)

Annual Summer Camp for youth 7-16 with bleeding disorders. Siblings of campers are welcome.

June 12 - Family Field Day at Camp Istrouma

June 14-24 - Multiple Virtual Sessions a week

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July 2021- Annual Adult Retreat, New Orleans July 30- Aug 1

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September 10-12, 2021 - Men's Retreat, Grand Isle

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September 18, 2021- 3rd Quarter Community Get Together, Alexandria 

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October 8- 9, 2021- Annual Meeting and Educational Symposium, Baton Rouge

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October-November- Poinsettia Sale, proceeds go to fund assistance and scholarship programs

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November 2021- 4th Quarter Community Get Together Weekend, Rock-N-Bowl New Orleans Nov 6, and Lafayette Nov. 7

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December 18, 2021- Holiday Annual Family Day, Baton Rouge (Locations TBD)

Lunch and activities for the entire family

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2021 Support Groups

LHF will launch our support groups on February 11th at 6PM. Whether you are a mom, dad, couple, teen, or newly diagnosed, we have a group  for you. Our groups are intended to provide support to all who live with the affects of bleeding disorders. Groups will meet every other month virtually till we can meet in person. If you are interested in joining one of our groups, you can use the link below to let us know!

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Virtual

Programs

LHF will continue to provide educational and family fun activities virtually as we carry on our journey with the Covid-19 Pandemic. We want to keep our bleeding disorder community connected and what a great way to do so! We strive to bring you innovative and new programming with the help of our sponsors. Join us till we can meet in person! 

Virtual Program Dates (All presentations start at 6:30 PM CT unless noted)

April 2021

• 4/6 Pfizer Community Connections Program Series: Balancing Emotional Wellness 

• 4/8 Spark Therapeutics: Understanding Gene Therapy Research and It's Potential Application to Hemophilia 7:00 PM (CT)

• 4/13 BioMarin: Virtual Gene Therapy Jeopardy

• 4/22 Novo Nordisk Community University Expert Series: 8 Tips to Survive Adulting

• 4/29 Takeda HELLO Talk Educational Series: Part 1 Von Willebrand Disease A-Z

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May 2021

• 5/4 Takeda HELLO Talk Educational Series: Part 2 Von Willebrand Disease A-Z

• 5/27 Pfizer Community Connections Program Series: Planning Your Future - Aging With Hemophilia

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June 2021

• ​6/17 Sanofi Core Conversations: The Power of Empowerment​

*All programs require registration. Registration invites are sent via Email and posted on our Website and Facebook page. Please contact us at (225) 291-1675 or email should you have any questions.