First Step Support Group Meetings
Location: LHF Office Suite (click here for map)
3636 S. Sherwood Forest Blvd., Suite 390 (new area)
Baton Rouge, LA
Time: 6:30 - 8:30 p.m.
RSVP: please click here to register online or email the LHF office.
First Step Brochure: click here
The First Step Program is designed for adults. If you want to attend and need financial assistance to help cover a child care provider, or are in need of travel assistance (gasoline gift card) please contact the LHF office in advance of the meeting by calling our toll free number at 800-749-1680 or 225-291-1675.
Since we serve dinner and refreshments at the First Step meeting we really need to know if you plan to attend and the total number in your party. Please RSVP in advance of the meeting, even if you are in need of a stipend. You can do so by clicking here, or by calling 800-749-1680, or emailing Kristin at Kristin@lahemo.org. Don’t forget to tell us the number in your party!
First Step meetings provide networking, support and education for families and patients with bleeding disorders. The meetings are held once a month. Each meeting includes a speaker with information of interest to the group. Attendees enjoy refreshments and networking after each meeting.
Meeting Schedule:
January 17: Nose bleeding and navigating the Emergency Dept. Speaker: Dr. Tami Singleton, MD - Pediatric Hematology
February 14: Bullying: What is it and how can you and your child deal with it. Speaker: Sue Due Treil, PhD, LCSW - Hemophilia Social Worker
March 20: A night of the history of Hemophilia: The Dark Ages to the Present. Speaker Karen Wulff, RN - Hemophilia Nurse Coordinator
April 17: Normal growth and development: What to expect over the years from the physical, psychological and parent's perspectives. Speaker: Karen Wulff, RN, Sue du Treil, PhD, LCSW, Donna LeBrun, & Shelby Conway
May 15: Pt 1) How to prepare your child's day care or new school for his arrival. Speaker: Shelby Conway. Pt 2) So your child is six and it is time for him to go to summer camp: What to expect from yourself and your child? Speaker: Donna LeBrun
June & July: SUMMER BREAK
August 21: How to modify sports through life to accomodate Hemophilia. Speaker: Anita Wood LPT
September 18: How do you protect your children from predators without scaring them? Speaker: Sue de Treil, PhD, LCSW
October 16: Current research in Bleeding Disorders. Speaker: Cinday A. Leissinger, MD, Medical Director of the Louisiana Center for Bleeding and Clotting Disorders
November 13: Overview of Inhibitors in Hemophilia and discussion of current treatment and research. Speaker: Rebecca Kruse-Jarres, MD Hematologist
December 18: Christmas Party (Children are invited)
